A new publication from MYCology Advocacy, Research & Education (MyCARE) summarizing the results of the first pan-fungal disease patient/provider summit.

For Immediate release: Integrita Foundation’s MYCARE initiative is pleased to announce the publication of the article, Shared Vision for Improving Outcomes for Serious Fungal Diseases: Report of a Patient, Caregiver, and Clinician Summit, in Open Forum Infectious Diseases in April 2024. This groundbreaking publication has been featured as an Editor’s Choice article.

Read the full release now!

 

In May MyCARE held our 2023 Patient & Caregiver Summit: A Shared Vision for Improving Fungal Infection Outcomes in Denver Colorado. Attendees received a very special welcome and thank you from Speaker of the House Kevin McCarthy (CA-20). Speaker McCarthy has been instrumental in bringing fungal diseases including Valley Fever, which impacts his District, to the national agenda. He continues to prioritize funding for both the National Institute of Health and the Centers for Disease Control and Prevention to increase their research and education efforts regarding fungal infections.

Below are videos and photos from the summit

 

 

 

MyCARE hosted the first fungal Patient/Provider Summit. The 1.5-day summit was be the first meeting of patients, caregivers, and professionals with a goal of improving outcomes across chronic, severe, and invasive fungal infections.

The Summit :

Gathered stakeholders with an interest in the range of fungal pathogens

  • Patients/caregivers
  • Mycology experts
  • Regulatory/government experts
  • Industry

Established a consensus on the unmet needs in advocacy, research, and education

Reviewed best practices from other advocacy organizations

Defined priorities for:

  • Advocacy
  • Research
  • Education

Created a strategic and tactical outline.

In the near future we will publish the proceedings

To learn more about the summit, contact Tom Davis.